Sunday, 19 July 2015

An interview with Lily T

Sunday Sunshine... 

A beautiful Sunday today. A home cooked breakfast at Mum & Dad’s house. Moroccan baked eggs and rhubarb & berry pudding. A visit to see Lily; and weather that made it feel like Spring was coming. Crisp and fresh, sun shining bright, with a hint of warmth and happy. It’s amazing how a bit of sunshine can change your mood. It can change your perspective and instantly makes you feel hopeful and positive. I think Lily must have felt this from her Level 5, Bay 9 house today too…she knew the sun was shining…

Lily T despite only 2 short weeks on earth has attracted the love, affection and well wishes of many friends and family (her adoring fans- already a rockstar!) More than ever before in the thoughts of many, and keeping us on our toes and making sure life is already very much all about her. Today as we entered with Grandma & Grandpa Sharp, she looked like a little piece of…... Curled up on her tummy, legs and arms tucked in neatly, she was peaceful and still (a rarity- every new doctor/nurse comments on her level of activity and movement). The calmness she exuded as she napped was soooo nice, very different to the last two days where she has constantly set off her oxygen alarms for hours on end, due to leaky tube, had a sore tummy from her milk and been put onto a different type of ventilation which delivers rapid amounts of air to her lungs to clear them of carbon dioxide (because it seems she does not want to do this for herself!). The high pressure ventilation is like a baby massage, pumping 14 breath per second into Lily, giving her chest a constant little wobble as it pumps in the air. 

I thought it would be good today to interview Miss Lily and get her thoughts on what is going in the crib...Bay 9: Place 4. After all she is definitely already a medical veteran.


Here we go:

Lily Lee Roth? Lily Van Halen?
 Good Morning Baby T, thank you for allowing us into your crib today. Please share your thoughts so far with your followers…

If you had one message to tell everybody what would it be?
Hold in there Mum and Dad. Contrary to what I look like in here, I'm just chilling out...it may be tough sometimes, but I'm actually super strong and stubborn like Mummy, so I'll get through this…just in my own time and my own way. Keep believing in me and everything will be ok. I don’t know what you are all so worried about, I’ve got this!

What do you want to be when you grow up?
I'm going to be a mover and a shaker in this world, so I'll do something that makes a difference somewhere. I'll go further and higher than Mummy and Daddy ever have and cause lots of trouble. I see myself doing something that helps others. Mummy and Daddy don’t want me to be too extreme, but I wouldn’t be surprised if I end up in some kind of humanitarian work, saving whales on the Sea Shepard, advocating for women who suffer domestic violence, or, building schools in developing countries. This will go with my courage, passion, and zest for life…

What has your stay in hospital been like so far? 
This place is ok, they feed me, change my bed, clean me, and make sure everything is ok...so not too bad really, better than a crummy hotel without heating. I'm not too fussed about all the things going on in here, there are lots of lights and sounds all through the day and night, but these have become the creature comforts I am used to. 

How is the food?
Mum's milk is yum, they don't give me enough. I'm having a break at the moment though, so that my tummy can learn to grow and digest it all a bit better. My tummy has been misbehaving, so I'll try my milk again in a day or two. That stuff is great though, can’t wait to get onto something more substantial though, you can’t get a good steak in here, and there’s no raspberry cordial either…

Do you have a favourite nurse?
I like the nurses who talk to me and say nice things when they jab me with needles and stick things up my nose. I have a very cute personality, so it's hard not to love me, but I like the nurses who tell me I'm cute too. When the nurses are annoying me I swat at them with my arms to get them to go away, I wriggle around in my bed to move my lines away (which annoys the nurses sometimes), and I jiggle around when they try to change my nappy. I prefer it dirty. I don’t know why they have to change it all the time! Grownups and cleanliness- go figure!!

What are you going to do when you get out? 
I’m going to get some lovin’ from Mum & Dad, and anyone else who will cuddle me. I can’t wait to see my new digs (they better be good), and I’ve heard Mum and Dad talk about a four legged friend at home. I hope she likes me. I’ll just poke her in the eye if she doesn’t. I can’t wait to share my smile and cute little button nose with family and friends, and look forwards to walking around the park in my snazzy new pram, all kitted out in the cute clothes people have been buying me.


How do you feel about …..Oh right sorry…
I need to keep napping in here, that’s enough for today, it’s time for Dad to read me a book again. I need to find out what happens to Grandma when George gives her the marvelous medicine. Go take your questions elsewhere…





1 comment:

  1. Hi Robyn! It's Erin, Chris(topher)'s partner. Peter and Wendy told me about your blog, so I thought I'd check it out. It's been really touching to read about your journey so far, and you write really well! Congratulations on being so brave throughout this ordeal... It clearly hasn't been easy! I really hope Lily Grace continues to thrive and fight this situation. Best wishes. <3

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