Today Mr T and I celebrate 5 years of marriage. Usually, I
like an outing and a walk with a nice meal somewhere. Today we did a walk
(around the block) and have spent a lovely day at home pottering, watching movies
and baking.
Mr T has been putting the final touches on a very special
project this afternoon. He started a song for Lily many weeks ago, that has
grown into a work of art! The song is called Lily (Now You’re Here). It captures beautifully the feeling and
emotion of Lily, but also serves as a song for all preemie babies, and parents
of preemies. The sounds and words capture a time that we will always remember,
but one that is also shared by many other parents before and after us. As a gesture
towards the amazing work of music therapist Liz Mclean that we met during our
time at Monash; Mr T has decided to offer the song recorded by his band Hammercan for download by donation. The
details can be found here… http://www.hammercan.com/hammercan-charity---music-therapy---monash-childrens-hospital.html.
All the donations will go back into supporting and growing the Music Therapy
program at Monash Children’s Hospital. Please share with everybody, we would love
this song to be heard by many!
As Mr T has finished Lily’s song, Lily has been home for nearly
three weeks. She nearly feels like part of the furniture, and already it is
hard to imagine our little home without her. As I hoped Lily’s arrival at home
is slowly helping to heal the wounds, and the pure joy of Lily is slowly taking
over from the chip I have been carrying on my shoulder. I realised I was
carrying this around as I drove to the shops alone on Wednesday; that if I didn’t
start enjoying my time with Lily more and stop worrying about her next vomit, a
breath held, a choke or a cough, then I’d miss all the cuteness and love in
between. Nothing will ever change Lily being born at 25 weeks, the challenges
she will face, the pregnancy I feel I missed out on….time to move on and live in
the moment. Time to let go of the sadness, anger and grief, and be happy! Happy
for Lily, happy for my family and happy for me!